Lecture Series #8: ELSI and Data Protection for Rare Diseases Data

Join us for the 8th HemaFAIR/HELIOS lecture: “ELSI and Data Protection for Rare Diseases Data” 🧬
🗣 Speaker: Ms. Annalisa Landi, FGB
📅 Date: March 27 | 🕒 Time: 3 PM EET
💻 Platform: Microsoft Teams (https://gqr.sh/6Lqd)
Explore the ethical, legal, and social challenges of handling rare disease data. Don’t miss it!

About the speaker:

Ms Landi is a researcher at Gianni Benzi Pharmacological Research Foundation (FGB) in Bari, Italy. She holds PharmD, II level post-graduate Master in Regulatory Sciences “G.Benzi” at University of Pavia, She also completed an internship trainee at Leiden University Medical Center in the FAIR team. She is a Deputy member of the EJP RD Advisory Regulatory and Ethical Board (AREB) and a member of the WG3 of the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP).

She is involved in scientific, ethical, and regulatory activities, particularly related to clinical studies, data protection and confidentiality, planning and managing patient registries and medicine databases, and health data and accessibilities issues. She has collaborated on several national and international projects dealing with ethics in biomedical research.