WELCOME TO OUR WEBSITE.

HemaFAIR

with a focus on the use of FAIR data and standards in research and education.

Our Mission

To promote multi-centre, data-driven, patient-centred research in rare haematological diseases (RHDs) by demonstrating the application of FAIR principles to RHD research at national and international levels

Upcoming Events

Feb

Lecture Series #11: Inside the Swiss Transplant Cohort Study App Ecosystem: Quick Tour and Project Management Insights

2026-02-25 @ 11:00 AM - 2026-02-25 @ 12:00 PM

Online Event

Mar

Lecture Series #12: Development of Molecular Tools for Diagnostic Applications within Academia and Industry

2026-03-09 @ 02:00 PM - 2026-03-09 @ 03:00 PM

Online Event

May

Federated Data Analysis Training School & Hackathon

2026-05-11 @ 09:00 AM - 2026-05-14 @ 05:00 PM

Past Events

Feb

Lecture Series #10: Building Inclusive Organisations: Gender Equality Frameworks in the EU

2026-02-06 @ 11:00 AM - 2026-02-06 @ 12:00 PM

Online Event

Apr

Lecture Series #9: Federated analysis of FAIR Data

2025-04-10 @ 03:00 PM - 2025-04-10 @ 04:30 PM

Online Event

Mar

Lecture Series #8: ELSI and Data Protection for Rare Diseases Data

2025-03-27 @ 03:00 PM - 2025-03-27 @ 04:00 PM

Online Event

Most Recent News

HemaFAIR News

📰 HemaFAIR contributes to the EMA public consultation on patient experience data

February 19, 2026 No Comments

HemaFAIR News

Hemafair training materials now available on ELIXIR TeSS!

February 16, 2026 No Comments

STSE RIGHT

Third Short Term Staff Exchange (STSE) on the Ethical and Regulatory Dimensions of Artificial Intelligence in Rare Haemoglobinopathies in Italy, July 2025

August 8, 2025 No Comments

36

Months

4

Countries

5

Consortium Partners

20

Deliverables

For any questions about HemaFAIR, do not hesitate to reach out us

WELCOME TO OUR WEBSITE.

HemaFAIR

with a focus on the use of FAIR data and standards in research and education.

Our Mission

Upcoming Events

Upcoming Events

Lecture Series #11: Inside the Swiss Transplant Cohort Study App Ecosystem: Quick Tour and Project Management Insights

Lecture Series #12: Development of Molecular Tools for Diagnostic Applications within Academia and Industry

Federated Data Analysis Training School & Hackathon

Past Events

Lecture Series #10: Building Inclusive Organisations: Gender Equality Frameworks in the EU

Lecture Series #9: Federated analysis of FAIR Data

Lecture Series #8: ELSI and Data Protection for Rare Diseases Data

Most Recent News

📰 HemaFAIR contributes to the EMA public consultation on patient experience data

Hemafair training materials now available on ELIXIR TeSS!

Third Short Term Staff Exchange (STSE) on the Ethical and Regulatory Dimensions of Artificial Intelligence in Rare Haemoglobinopathies in Italy, July 2025

36

4

5

20

Subscribe to our newsletter

to keep you up to date on our activities.

WELCOME TO OUR WEBSITE.

HemaFAIR

with a focus on the use of FAIR data and standards in research and education.

Our Mission

Upcoming Events

Upcoming Events

Lecture Series #11: Inside the Swiss Transplant Cohort Study App Ecosystem: Quick Tour and Project Management Insights

Lecture Series #12: Development of Molecular Tools for Diagnostic Applications within Academia and Industry

Federated Data Analysis Training School & Hackathon

Past Events

Lecture Series #10: Building Inclusive Organisations: Gender Equality Frameworks in the EU

Lecture Series #9: Federated analysis of FAIR Data

Lecture Series #8: ELSI and Data Protection for Rare Diseases Data

Most Recent News

📰 HemaFAIR contributes to the EMA public consultation on patient experience data

Hemafair training materials now available on ELIXIR TeSS!

Third Short Term Staff Exchange (STSE) on the Ethical and Regulatory Dimensions of Artificial Intelligence in Rare Haemoglobinopathies in Italy, July 2025

36

4

5

20

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